Blog

Epilepsy, seizures &
living well

Practical articles on seizure management, PIP, conditions, carers, and getting the most from your healthcare. Written for people in the UK living with seizure conditions — and those who love them.

Seizure Tracking

Best seizure tracker app in the UK: what to look for and why it matters

Looking for a seizure tracker app? One-tap logging, PDF reports, shared carer access — what features matter most, and how the right app improves your medical care.

Seizure Tracking

Digital seizure diary vs paper: which is better for tracking your seizures?

Comparing digital seizure diaries and paper notebooks — data accuracy, consistency, GP reports, carer access, and why most people switch to an app within months.

Seizure Tracking

What to look for in a seizure diary app: a practical checklist

Not all seizure diary apps are created equal. A checklist of the features that genuinely matter for reliable seizure tracking, GP reports, and long-term use.

Seizure Tracking

How to log seizures on your phone quickly and accurately

Record seizures on your phone in seconds — what to log, when to log it, and why speed and consistency matter more than detail.

Healthcare

How to create a seizure report your neurologist can actually use

Make the most of short neurology appointments with a clear seizure report. What to include, how to format it, and why PDF exports save time and improve care.

Benefits & PIP

How to track seizures for PIP evidence: building a record that supports your claim

A documented seizure log is powerful PIP evidence. What to record, how to present it, and why digital tracking strengthens your benefits claim.

Carers & Family

Carer seizure logging: why shared access to a seizure diary matters

Carers witness seizures the person doesn't remember. Shared access to a digital seizure diary fills critical gaps in the medical record and improves care.

Healthcare

How seizure tracking improves your treatment: the evidence and the practice

Consistent seizure tracking helps neurologists adjust medication, identify triggers, and spot patterns. How logging every seizure leads to better treatment outcomes.

Seizure Tracking

Epilepsy app for the UK: what NHS-friendly seizure tracking looks like

Most epilepsy apps are built for the US. What a UK-focused seizure tracker needs — NHS appointment-ready reports, PIP evidence, and GP-friendly exports.

Seizure Tracking

Switching from a paper seizure diary to a digital tracker: a practical guide

Ready to move from pen and paper to a seizure tracker app? How to make the switch smoothly, what to do with your old records, and what to expect.

Seizure Management

Epilepsy and exercise: what's safe, what to avoid, and why tracking matters

Exercise is good for epilepsy — but some sports carry real risks. A practical guide to safe activity, water safety, post-exercise seizures, and tracking patterns.

Medication

Generic vs brand-name epilepsy medication: why switching matters and what to track

Switching between generic and brand-name epilepsy medication can affect seizure control. Learn the rules, what to watch for, and why logging is essential.

Seizure Triggers

Photosensitive epilepsy and screens: what's actually risky and how to track triggers

Only a small fraction of people with epilepsy are photosensitive — but for those who are, screens, lights, and patterns matter. Here's what the evidence shows.

Living with Epilepsy

Memory problems and epilepsy: why your brain forgets and how tracking compensates

Memory problems are one of the most common and least discussed effects of epilepsy. Here's why it happens, what it feels like, and how a tracker becomes external memory.

Women's Health

Catamenial epilepsy: hormonal seizure patterns and why tracking changes everything

Catamenial epilepsy links seizures to the menstrual cycle. Learn the three patterns, why it's underdiagnosed, and how cycle tracking transforms treatment.

Seizure Types

Tonic-clonic seizures: what happens, first aid, and why every episode should be logged

What happens during a tonic-clonic seizure, how to help safely, when to call 999, and why logging every episode with accurate timing matters for treatment.

Seizure Types

Focal seizures: the seizures most people don't recognise

Focal seizures range from brief déjà vu to full impaired awareness. They're underreported, often unrecognised, and critically important to track.

Seizure Types

Myoclonic seizures: sudden jerks that are easy to dismiss but important to track

Myoclonic jerks are brief, involuntary muscle jolts often dismissed as clumsiness. Understanding them — and logging the pattern — can change your diagnosis.

Seizure Types

Absence seizures in adults: often missed, frequently misdiagnosed

Absence seizures aren't just a childhood condition. In adults they're mistaken for daydreaming, inattention, or anxiety — and are far more common than most people think.

Seizure Types

Atonic seizures and drop attacks: understanding sudden falls and how to document them

Atonic seizures cause sudden loss of muscle tone, leading to dangerous falls. Documenting every episode — including what you were doing — helps guide treatment.

Seizure Management

The postictal state: what happens after a seizure and why tracking it matters

Confusion, headache, fatigue, memory loss — the postictal state can last minutes or days. Tracking after-effects systematically reveals patterns your doctor needs to see.

Seizure Management

Why pen-and-paper seizure diaries fail — and what to use instead

Paper diaries get lost, forgotten, and abandoned. After a seizure you can barely stand, let alone write. There's a better way to keep a reliable seizure record.

Carers & Family

Sharing your seizure data with family and carers — why it matters and how to do it safely

Carers witness seizures you don't remember. Giving them secure access to your seizure log fills the gaps and improves every medical conversation.

Emergency Care

Seizure clusters and status epilepticus: when seizures become an emergency

When seizures come in clusters or last more than five minutes, it's an emergency. Knowing what to do — and having your seizure history ready — can save a life.

Seizure Management

Epilepsy and sleep: the two-way relationship you need to understand

Sleep deprivation triggers seizures. Seizures disrupt sleep. Breaking the cycle starts with understanding the pattern — and that means tracking both.

First Aid & Care

Seizure first aid in the workplace — what every employer and colleague should know

What to do if a colleague has a seizure at work, employer responsibilities under the Equality Act 2010, and how to create a seizure action plan for the office.

Healthcare

Why your GP wants to see a seizure diary — and how to keep one properly

What information to record, why doctors value seizure diaries for diagnosis and treatment decisions, and the difference a digital log makes at your next appointment.

Women's Health

Epilepsy and pregnancy: planning ahead with your seizure records

Pre-conception planning, medication reviews, valproate risks, and why your seizure frequency data is essential for safe obstetric care in the UK.

Children & Families

Creating a seizure management plan for school — a parent's step-by-step guide

What a school seizure plan should include, how to work with your child's SENCO, training staff on emergency medication, and keeping records for annual reviews.

Practical Living

Travelling with epilepsy: insurance, medication, and seizure logging abroad

Declaring epilepsy for travel insurance, carrying medication through airports, managing time zone changes, and why logging seizures while abroad matters.

First Aid & Care

What to do immediately after a seizure — a carer's guide

The moments after a seizure can feel chaotic and frightening. This practical guide covers exactly what to do, what not to do, and how to log what happened while it's still fresh.

Benefits & PIP

How to prepare for a PIP assessment when you have epilepsy

PIP assessments are daunting for anyone with a seizure condition. Here's how to prepare, what evidence to bring, and how to describe the real impact of your condition.

Conditions

NEAD explained: what Non-Epileptic Attack Disorder actually means

A diagnosis of NEAD often comes with confusion and stigma. We explain what it is, how it differs from epilepsy, and why logging your episodes still matters.

Seizure Management

The most common seizure triggers — and how tracking helps you spot them

From sleep deprivation to stress and missed medication, understanding your personal triggers can reduce seizure frequency. Here's how a seizure diary reveals patterns you'd never spot otherwise.

Legal & DVLA

Epilepsy and driving in the UK: what you need to know

DVLA rules, when you must notify them, what seizure-free periods apply, and how a documented seizure log supports your case when applying to drive again.

Healthcare

How to make the most of a short neurology appointment

Ten to fifteen minutes with a neurologist goes fast. Here's how to use your seizure log to communicate clearly, get the right questions answered, and leave with a plan.

Conditions

Dravet syndrome: a carer's guide to daily management and documentation

Caring for someone with Dravet syndrome involves constant vigilance. This guide covers daily logging, medication management, and building a medical record that supports better care.

Seizure Management

Nocturnal seizures: how to track what happens while you sleep

Many people with epilepsy have seizures at night without knowing it. We look at the signs, how to log nocturnal episodes, and why they matter for your medical records.

Mental Health

Epilepsy and mental health: the connection nobody talks about enough

Anxiety, depression, and ADHD are significantly more common in people with epilepsy. Here's why the connection exists, how seizure patterns intersect with mental health, and where to get support.

Children & Families

Absence seizures in children: signs, school impact, and what to record

Absence seizures are often missed or mistaken for daydreaming. This guide helps parents recognise the signs, understand the school impact, and keep records that support a diagnosis.